Education and Research Initiatives
Education Initiatives for Providers
Education Initiatives for Participants
Information about Our Collaborator
In addition to the research registry, ICARE has multiple educational and research-based initiatives for health care providers and members of the general public. The goal of these initiatives is to increase the availability of resources and programs in cancer genetics. The initiatives described below are currently in development and/or in practice in various professional or patient-based cancer communities.
Educational Initiatives for Providers
The goal of the educational initiatives for health care providers is to provide them with information and guidance as needed about management of patients with inherited cancer predisposition. Resources that are currently available include:
- Dedicated phone line and email address
- Presentations by ICARE study team members
- Access to case conferences to review unusual or complex genetics case studies A brochure outlining clinical cancer genetics services is available through Moffitt. If you would like to request this brochure, click here.
Resources that are currently under development include:
- A service delivery binder containing valuable information on the best practices of genetic counseling and testing
If you are a health care service provider and would like to learn more about these resources,
click here. If you would like to become part of our distribution list, please complete our
contact form. Additional Resources for Providers:
National Cancer Institute PDQ Cancer Information Summaries: Genetics
PDQ is an online database developed and maintained by the National Cancer Institute. It is designed to make the most current, credible and accurate cancer information available to health professionals and the public.
Educational Initiatives for Participants
Many participants have questions about their cancer risks and genetic testing. The goal of the educational initiatives for participants is to provide services that answer these questions and ultimately provide patients with information which may be helpful to them. These resources include:
- Periodic ICARE newsletters
- Dedicated ICARE phone line and email address for participants with specific questions to contact genetic professionals
- Access to regular ICARE updates via Facebook
If you would like to learn more about these resources, please click here.
Additional Resources for Patients:
Facing Our Risk of Cancer Empowered (FORCE)
An organization for women whose family histories and genetic status put them at high risk for breast and ovarian cancer, and for families in which a BRCA gene change may be present. Click here to visit the FORCE website or call 1-866-824-7475.
National Society of Genetic Counselors (NSGC)
The mission of the National Society of Genetic Counselors is to advance the various roles of genetic counselors in health care by fostering education, research and public policy to ensure the availability of quality genetic services. To locate genetic counseling services close to you, please
click here.
Information about Our Collaborator
We have been fortunate to work with Dr. Sue Friedman, Executive Director of FORCE, toward increasing the number of participants. FORCE was founded on the principle that no one should face hereditary cancer alone. The mission of FORCE is to improve the lives of individuals and families affected by HBOC (Hereditary Breast and Ovarian Cancer).
As a member of the ICARE research team, her constant support and guidance have played an important role in our efforts to increase community awareness of hereditary cancer. FORCE has developed an extensive collection of educational materials, which are regularly shared with participants in our ICARE Initiative.
To learn more about FORCE, please click here.